Patient Advocacy Groups And Online Resources - Pharma

Relevant Publications

Navigating Dravet syndrome in Spain: A cross-sectional study of diagnosis, management, and care coordination.

Issue Release: 2024

iCare - a self-directed, interactive online program to improve health and wellbeing for people living with upper gastrointestinal or hepato-pancreato-biliary cancers, and their informal carers: the study protocol for a Phase II randomised controlled trial.

Issue Release: 2024

Rare disease 101: an online resource teaching on over 7000 rare diseases in one short course.

Issue Release: 2024

The experiences of patients, caregivers and donors on transplant journeys in Canada: A convergent parallel mixed methods study.

Issue Release: 2023

Identifying Distinct High Unmet-Need Phenotypes and Their Associated Bladder Cancer Patient Demographic, Clinical, Psychosocial, and Functional Characteristics: Results of Two Clustering Methods.

Issue Release: 2021

Educational and knowledge gaps within the European reference network on rare endocrine conditions.

Issue Release: 2021

Concerns and Needs of Patients With Head and Neck Cancer in the COVID-19 Era.

Issue Release: 2021

Patient Frustration with Pelvic Organ Prolapse Education Met with Resilient Response.

Issue Release: 2021

Medicine and surgery residents\' perspectives on the impact of COVID-19 on graduate medical education.

Issue Release: 2020

Are patient educational resources effective at deterring stroke survivors from considering experimental stem cell treatments? A randomized controlled trial.

Issue Release: 2020

What Twitter teaches us about patient-provider communication on pain.

Issue Release: 2019

Quality of Care for Huntington\'s Disease in the United States: Findings from a National Survey of Patients and Caregivers.

Issue Release: 2019

Inferring bladder cancer research prioritization from patient-generated online content.

Issue Release: 2018

Building a Bridge Between Genetics and Outcomes Research: Application in Autism (The AutGO Study).

Issue Release: 2018

The involvement of patient organisations in rare disease research: a mixed methods study in Australia.

Issue Release: 2016

The state and potential of social media in bladder cancer.

Issue Release: 2015

Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey.

Issue Release: 2015

Survey of consumer informatics for palliation and hospice care.

Issue Release: 2011

Firearm injury prevention: Internet resources for the health care provider.

Issue Release: 2001

Cerebellar Ataxia.

Issue Release: 2000

What are the Challenges in Implementing Collaborative Care Models?

What are Adverse Drug Events?

What Role Do Pharmacists Play in Patient Education?

How Can ADEs be Prevented?

Which Agencies are Involved?

What Strategies do Brand-Name Companies Use to Delay Generic Entry?

What Roles Do Pharmacists Play in Pharma?

What are the Benefits of Collaborative Care Models?

Why do Pharma Companies Use CROs?

What is the Future of ADE Management?

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